Supporting patients, families and researchers; developing cures together.

Aspartylglucosaminuria (AGU) Registry and Natural History Study


Join the Aspartylglucosaminuria (AGU) patient registry today—at no cost! Share your AGU story and play a pivotal role in advancing research and developing new treatments. This is your change to make a real difference for everyone in the AGU community. Join now to be part of the journey.

Need more information? Click here for details on how to register.

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the rare disease community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your rare disease research?